EG12
Item
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Title
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EG12
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Type
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Interview
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Date
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July 25th, 2019
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Description
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Mother of a child with a type of dwarfism talks about her struggles going back and forth between states for surgeries, therapies, and all the associated financial burdens. She shares her son’s experiences in achieving so much, yet closing himself off from the world. Currently she works in special education and has great sympathy and compassion towards children with autism spectrum disorder and how they should be treated. She described a very profound experience that gave her strength as a mother of a child with an ability difference and as a teacher of children with special needs: “God gave me a child and not anyone could just take care of that kind of child. So God chose me to take care of that kind of child, so I will take care of that one. So that gave me a lot of strength.”
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Language
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English
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Subject
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Dwarfism, autism, social isolation of children with ability differences, treatment of Muslim males after 9/11, financial hardship with medical expenses, parents not knowing about resources that are available, parents feeling extremely overwhelmed, the stigma of mental health issues in Muslim society, sexual abuse of females with ability differences like autism and cognitive issues, long term impacts of bullying on a person’s confidence and willingness to engage others, harmful/inadequate therapists and teachers, and the need for providers to understand Muslim culture. Inner strength as a parent and teacher, United States, India, 2019,Disability