NK13

Title: NK13
Type: Interview
Date: July 24th, 2019
Description: The respondent was born in Wisconsin and has an older sister with a Mild Cognitive Impairment. She states the Muslim community believes differences in ability or disabilities are tests from God. She has witnessed her sister face a few hardships with bullying, watching siblings surpass the levels she can achieve, and changes in routines including going to family parties or having no one available to bring her to activities. She also states that she thinks both genders experience the same types of attitudes associated with disabilities, but was thoughtful at the question. She also shared her respite care and babysitting experiences dealing with people who were insensitive to disabilities, and believes that people should have opportunities not only to learn about them, but interact with people with a disability.
Language: English
Subject: Cultural aspect regarding Muslims’ faulty explanations of mental illness and emotional issues. Making arrangements for care after the caregivers have died. Importance of family and extended family. Secrecy/stigma.
Needs: Respite care; knowledge of available resources; Muslim community being made more aware, informed, and sensitive; reducing ignorance in Muslim community; dismantle old beliefs; need for caregivers to understand the culture of those receiving care, United States, 2019,Disability