EG39

Item

Title
EG39
Type
Interview
Date
March 13th, 2020
Description
This married mother of three children, who emigrated from Bangladesh, is a caretaker for her adult son who has Cerebral Palsy and Autism Spectrum Disorder. She and her family recently moved to Milwaukee and have been struggling to find programing for their son. She also discusses topics such her responsibilities as a caregiver, community response, her believed reasoning for her son’s disability, and her fears for the future.
Language
English
Subject
Respite care; day programs for fun activities and for skill-building; programs where people with ability differences can work or volunteer; finding the balance between caring for the child with an ability difference and helping him/her be independent; being stretched too thin, which also affects the amount of time/energy a parent can give to the other children in the family; depression; social isolation for the child; marriageability of a sibling (e.g., if suitor’s family thinks their child will end up caring for the sibling with the disability when the parents die); Also, people’s lack of acknowledgement or eye contact with the individual, as if s/he was invisible. The importance of family support; the importance of faith and religion, Bangladesh, 2020, Disability
Item sets
Interviews

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