NK14
Item
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Title
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NK14
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Type
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Interview
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Date
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July 24, 2019
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Description
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The mother of an adult daughter with cognitive delay speaks about her experiences in the schools and Muslim community. Originally from Chicago, she moved to Milwaukee in the late-1980s. She wishes that she had been more aware of the resources that are available, rather than her assuming that programs didn’t apply to her. She suggested that perhaps the experts could be more proactive in letting their clients know what is available. She expressed belief that her role is to be the sole caregiver, which leads to difficulties for her to ask for help. She also suggested that healthcare providers, teachers and others who work with special needs, could be better informed/educated on the religion of Islam and how its religious values are different regarding transitioning into daycares and adult care facilities and things like that. She discussed stigmas/prejudices in the Muslim community regarding people with ability differences.
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Language
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English
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Subject
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Mild Cognitive Delay, prejudice/stigma in the Muslim community, need to educate Muslim community about ability differences, her faith and culture call on her (and her other children when the parents are dead) to care for their sibling who has ability differences, belief that the mother has sole responsibility for her daughter, healthcare providers/teachers need to be better understand Islam in order to better serve Muslims with ability differences (or caregivers). United States, Jordan, Palestine, 2019,Disability
