EG40
Item
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Title
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EG40
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Type
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Interview
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Date
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March 27th, 2020
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Description
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The respondent is in the age range of 25-34 years old and is currently living in Milwaukee, Wisconsin. He first came to the United States about 10 years ago to pursue higher education and job opportunities; he currently works in a professional position. The respondent has three children who are an infant and two four-year-old twins – a son and a daughter. In this interview, the respondent discusses the history and impact of his daughter’s differences of ability on his family. The respondent’s daughter was diagnosed with autism spectrum disorder and a mixed receptive-expressive language disorder at a young age, and has great difficulty communicating with others. The respondent describes his struggles in balancing supporting his family with caring for his daughter and talks about how his family works together to support her and fulfill her needs. The respondent also emphasizes how awareness is the most fundamental resource needed to combat stigmatization, which applies to Mosques as well as society in general. He highlights various organizations that have helped him as a father and caregiver. He also explained that more could be done to educate the caregivers on what they need to do and what not to do.
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Language
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English
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Subject
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Autism spectrum disorder, caregivers, children with disabilities, mental health, receptive-expressive language disorder, importance of MUHSEN, stigma within society and Muslim community, generational differences in acceptance/understanding of people with ability differences, norm of keeping disabilities “hidden” or “secret.” Muslim community and society need to be better educated about ability differences. Caregivers need more support about what to do and where to go for resources. Workplace policies need to be changed to support families. India, 2020, Disability
EG40