Items
Subject contains
Disability
In item set
Interviews
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Interview Respondent was born and raised in Palestine and immigrated to the United States in 1993. She is a single mother of several children who are under 18 and several who are young adults. She was diagnosed with breast cancer about one year ago. In the interview, she discussed how her condition disabled her physically and financially. She wasn’t able to work anymore and had to undergo surgeries, chemo and radiation therapy, which resulted in her being bedridden. She lost her main source of income and started reaching out to the Islamic community in Milwaukee for help. She described how her disability impacted her physically, preventing her from completing her everyday normal tasks, and also affected her emotionally. Respondent emphasized that her spirituality never wavered and that she continues to have full faith in Allah and be thankful to Him, for she’s luckier than many others out there. Note: In the transcript, I refers to Interviewer, and R refers to respondent/interviewee. To protect the identity of the interviewee, some responses to questions are not provided. In such cases, this statement will show in the transcript: Information is not being made available. In other responses, specific details that might identify the family member(s) are omitted or made more general. Palestine, United States
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Interview The Caregiver is from Burma/Myanmar and was born in 1985. She immigrated to the United States in 2018 with her husband and four children, one of whom, is disabled. The Son, who is 16 years old, has spina bifida and other health complications such as an amputated leg and trouble going to the bathroom by himself, requiring a catheter. Caregiver does not speak English, so Fatima Nobi Husein, a young woman who is Rohingya and enrolled in college, interpreted during the interview. During the recording, the interviewer asked a question, Fatima repeated it to Caregiver and Son, who responded in Rohingya; Fatima repeated their answers to the interviewer in English. This transcription only records the English questions and answers. During the interview, Caregiver and Son talked about the difficulties of moving to the United States and the challenges they face, particularly language barriers. However, they praise the help of community members and their caseworker, who have made a huge difference for them. They do not speak to the discrimination of individuals with disabilities in the Muslim or Rohingya communities. However, based on the Caregiver’s responses to several questions, it is clear that Caregiver prefers to keep information about Son within their private family life and a small circle of individuals (e.g., caseworker, doctors).
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Interview This individual, a man from Palestine that has lived in the United States since 1989, has wished to remain anonymous. He is currently caring for a family member, his eldest daughter, with mental illness, specifically schizophrenia. His family has been unable to provide proper care for this individual because she is refusing care. She currently lives at home with the interviewee. He discusses his own coping mechanisms as a caregiver and the social effects of his daughter's illness on her, her family, and her future. He also speaks about the stigma surrounding disabilities and mental illness.
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Interview This individual, a female from Palestine, who lived in Jordan for 10 years before migrating to the United States in 1991. She is currently caring for a family member, her son, with mental illness, specifically depression and schizophrenia. Her family has been unable to provide proper care for this individual because he is refusing care. He currently lives at home with the interviewee. She discusses her own coping mechanisms as a caregiver and the social effects of her son's illness on her, her family, and his future. She also speaks about the stigma surrounding disabilities and mental illness.
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Interview The respondent is a Palestinian woman from Milwaukee, Wisconsin. She and her husband have one teenager and four young adults. The second oldest son suffers from paralysis as a result of spina bifida. She is a leader and activist in the Milwaukee Muslim community and runs a non-profit. She discussed her life as a mother, caregiver, and community activist. Although she experienced a lot of emotional difficulties with handling all of her children and her son with differences in abilities, she notes that neither she nor her son has experienced any negative perceptions or discrimination based on her son’s disabilities. She does note, however, that although family and friends are helpful for providing logistical and emotional support, formal respite care is something that people in Milwaukee need desperately to care for these children, Palestine, United States
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Interview A 62 year-old woman born in Palestine and immigrated first to Ohio, then to Wisconsin. She takes care of her husband who suffered from a subdural hematoma around 3 years ago. She feels like her Muslim community supports the two of them, but when she really needs help she can only rely on her children. They attend social events at Sakina Center. She states that she thinks women with a difference in ability would be treated much differently than a man with the same difference, and that women would be viewed as less marriageable. In terms of support, she wishes that there was someone she could talk to about hard life choices, such as when and if she should put her husband into a nursing facility. She finds strength through her faith and hopes that the future generation has an easier time than she has had.
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Interview The respondent was born in Milwaukee. She has moved to several different countries and states during her lifetime. She is a caretaker for her 28-year-old son who has an intellectual disability; he lives with her. During the interview she discusses alternative medicines that have benefited her son, judgments and expectations she has experienced from other Muslims in the Mosques she has attended, discrimination her son faces being black, and the struggle of teaching him new activities of daily living.
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Interview SR08 is a Palestinian man from Milwaukee, Wisconsin, and has been diagnosed with diabetes, heart problems, and must undergo dialysis. Although he is currently retired, and can no longer work as a result of his condition, prior to his retirement he was an extremely active member of Milwaukee’s Muslim community and worked alongside local politicians to raise awareness and educate others on community issues. In fighting to dispel popular misconceptions about Islam, SR08 received many honors and awards, and in being one of the first members of Milwaukee’s Muslim community he has left a lasting legacy of leadership and advocacy. SR08 has five children: two sons aged 39 and 38 as well as three daughters aged 36, 34, and 25. In this interview, SR08 describes how his diabetes and dialysis routine have impacted his daily life and changed the way he interacts with his community. SR08 also explains some of the different resources available to older members of the Muslim community and describes how he views their effectiveness in socializing community members that are hindered by differences in abilities. Dialysis takes a toll on SR08, but he emphasizes the importance of staying positive and appreciating each day.
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Interview The respondent was born in the Southeastern region of the U.S. and moved to the Milwaukee area in 2006 when she married her husband. She is a caretaker for her 7-year-old daughter who has a sensorineural hearing loss, epilepsy and a global delay. Over the course of the interview, she discusses stressors, such as scheduling all her daughter’s appointments and therapies, her experience with the school district, her work with refugee families that come to America with children with disabilities, and the social expectations of her being a mother of a child with a disability.